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1.
Clin Pediatr (Phila) ; 61(2): 141-149, 2022 02.
Article in English | MEDLINE | ID: covidwho-1463115

ABSTRACT

Amid the COVID-19 crisis, children with special needs may have challenges. To determine emotional and behavioral challenges, 116 children aged 4 to 6 years, who received special education, were evaluated. COVID-19 negatively affected the families at a rate of 94.6%; 76.5% of the children's daily routines were worsened. Although the one-on-one time duration with the mother and father increased (73.5% and 66.7%), reading books (40.6%), play (17.2%), and overall activity durations (25.7%) decreased. The median screen time increased from 1 to 3 hours. According to the families, there was a regression in development in 18.8% of children. Special education practices at home were ceased by 17.2% of families, and a significant difference was found between the groups with and without regression in development in terms of the frequency of continuing special education at home. The development of children with special needs is an ongoing urgent situation; thus, besides protecting and promoting physical health during the pandemic, families and children should also be supported for developmental needs.


Subject(s)
COVID-19/prevention & control , Disabled Children/statistics & numerical data , Education, Special/standards , COVID-19/psychology , Child , Child, Preschool , Disabled Children/psychology , Disabled Children/rehabilitation , Education, Special/methods , Education, Special/statistics & numerical data , Female , Humans , Male , Quarantine/methods , Quarantine/psychology , Quarantine/standards , Surveys and Questionnaires , Turkey/epidemiology
2.
Soc Work Public Health ; 36(6): 638-646, 2021 08 18.
Article in English | MEDLINE | ID: covidwho-1307459

ABSTRACT

In the study, it was aimed to evaluate the problems and care burden of mothers who have a handicapped child in the pandemic process. The population of the descriptive study consisted of the mothers of the children who came to the rehabilitation center (n = 230), and the sampling consisted of the mothers who wanted to participate in the study (n = 216). The research data were collected through social media and the data were analyzed using the mean, standard deviation, percentage and frequency measurements, independent sample t test, Oneway anova, Kruskal wallis tests in the SPSS program. In the study, Burden Interview Scale (BIS) scores of the mothers who stated that the educational status of their child was adversely affected in the pandemic, stated that they were worried that there would be someone to take care of my child if I died, stated that the child's health checks were interrupted, stated that they did not send their child to school due to the fear of COVID-19, and reported that they had a problem in reaching the health institution was determined were significantly higher than. Mothers with handicapped children stated that their children experienced difficulties in important situations such as health checks and educations during the pandemic period. In addition, it was found that the care burden of these mothers was higher. During the pandemic period, it is necessary to make and support new regulations in accordance with the disability of these special children with state policies as well as healthcare professionals.


Subject(s)
COVID-19 , Caregiver Burden , Disabled Children , Mothers , Pandemics , COVID-19/epidemiology , Caregiver Burden/epidemiology , Child , Disabled Children/psychology , Disabled Children/statistics & numerical data , Female , Humans , Mothers/psychology , Mothers/statistics & numerical data
3.
Sci Rep ; 11(1): 3042, 2021 02 15.
Article in English | MEDLINE | ID: covidwho-1085409

ABSTRACT

This study aimed to reveal how the COVID-19 stay-at-home period has affected the quality of life (QOL) of children with neurodevelopmental disorders and their parents and to identify possible factors that enabled them to maintain their QOL. We enrolled 136 school-aged children (intellectual quotient ≥ 50) and their parents and administered QOL questionnaires to assess the maladaptive behavior of the children; depression, anxiety, and stress of the parents; and activities of their daily lives. The relationship between their QOL and clinical features was examined. The decrease in QOL of children and parents was associated with the mother's limited job flexibility. Decreased QOL was also associated with changes in the sleep rhythms of the children. Maladaptive behaviors in children were associated with parental stress. However, maintained QOL of some families who faced these same conditions of job stress and sleep disorders was associated with less parental stress, less parental depression and anxiety, and milder maladaptive behavior in children. Both mothers with limited job flexibility and changes in the sleep rhythm of children were associated with reduced QOL of children and their parents. Low parental stress was associated with decreased maladaptive behavior in children and with maintained QOL of the family.


Subject(s)
COVID-19/epidemiology , Neurodevelopmental Disorders/epidemiology , Quality of Life , Stress, Psychological/epidemiology , Adaptation, Psychological , Adolescent , Adult , COVID-19/psychology , Child , Disabled Children/psychology , Disabled Children/statistics & numerical data , Female , Humans , Japan , Male , Neurodevelopmental Disorders/psychology , Parents/psychology , Sleep
4.
J Pediatr Rehabil Med ; 13(3): 425-431, 2020.
Article in English | MEDLINE | ID: covidwho-970975

ABSTRACT

Over 80% of the children in the world have had their education impacted by COVID-19. For children with disabilities who receive special education services, access to in-person education and other resources at school is particularly important. The American Academy of Pediatrics advocates for students to attend school in person, without specifics for how children with disabilities can safely return to school. To appropriately plan and accommodate children with disabilities we must prioritize safety, allow for adherence to the Individuals with Disabilities Education Act, and preserve essential school staff. The less cumbersome default of confining students with disabilities to home is not acceptable. We provide an outline describing why Individual Education Plans and 504 plans are important, how they are related to the COVID-19 pandemic, and recommendations for measures to help with safe return to school for children with disabilities.


Subject(s)
COVID-19/epidemiology , Disabled Children/statistics & numerical data , Education, Special/organization & administration , Pandemics , Schools , Students/statistics & numerical data , Child , Comorbidity , Humans , United States/epidemiology
5.
J Pediatr Rehabil Med ; 13(3): 415-424, 2020.
Article in English | MEDLINE | ID: covidwho-949020

ABSTRACT

Children with disabilities are disproportionately impacted by COVID-19 and the containment response. Their caregivers must now adapt to increased stressors such as lack of access to needed therapies, medical supplies, and nursing care. Prior to COVID-19 these families were already marginalized, and this has only worsened during the pandemic. As a vulnerable population, children with disabilities have not been the focus of much discussion during the pandemic, likely because the disease disproportionately impacts older individuals. Nonetheless, children with disabilities should be a focus of evaluation and intervention to mitigate the negative consequences of COVID-19 and the resulting containment strategies. Their needs should be included in future crisis planning, as well. In order to raise awareness of pediatric rehabilitation professionals, health care administrators, policy makers, and advocates, this manuscript provides a discussion of the following topics: the immediate and ongoing impacts on children with disabilities and their families, the ethical concerns and implications of triage protocols for scarce resources that consider disability in their scoring systems, and optimizing medical care and educational needs in the time of COVID.


Subject(s)
COVID-19/epidemiology , Disabled Children/statistics & numerical data , Pandemics , Child , Comorbidity , Humans , SARS-CoV-2 , United States/epidemiology
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